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Monday, October 1, 2012

RSV Lock down

As we enter cold and flu season, this family is entering what's known in the preemie world as "RSV lock down."  Anthony and Aryanna both have chronic lung disease because of their premature birth and their prolonged time on oxygen.  Because of this and because of their weakened immune systems due to premature birth, they are extremely susceptible to contracting RSV (respiratory syncytial virus) and other illnesses (Aryanna has already been sick twice since she's been home even though we've been super careful).  When adults or healthy older children get RSV, the symptoms are usually no worse than a cold.  But for our little ones it could amount to another long hospital stay.  It can even be fatal in severe cases.  Here are some graphics that help illustrate why RSV is such a risk for our 29 week preemies:

https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDKDjyEZMOCGas-QKzBCFDK0s65tnm8xHlBIV1_89RO_W_76AlBfLTImI4YGIKctpo05pmQIRouhYAT07BZcL86j7tFN6ozT4rkNfR1MLcxXXgxkgS7NCqS_lpEoX-43hquIO4q3YK-nsJ/s1600/rsv2.jpg
 As you can see Anthony and Aryanna just aren't equipped to deal with a virus like this so these are some of the precautions our pediatrician and pulmonologist have recommended we take from now until the end of RSV season (usually October through April/May):

1.  They will be receiving monthly Synagis shots to help prevent RSV/lessen the severity of it if they do get it.  Thankfully, our visiting nurse can give the shot to them in our home so we don't have to take them to the doctor's office to get it.
2.  We will be limiting visitors (even more so than we already have).  The only people who will be able to come over are immediate family who have had their flu shots and whooping couch vaccines and haven't been sick and our in-home visiting nurse and OT.  We hate that most of you won't get to meet the twins until they are almost a year old (we want to show them off!), but we feel it will be worth it if it keeps them out of the hospital.
3.  We won't be able to take Anthony and Aryanna to any public places other than doctor appointments (so grateful we got the majority of those over with before the start of RSV season).  That means no trips as a family to the grocery store, the mall, or even church.  We are thankful that my parents and my sister, Bri are available some Sundays to watch the twins so Jose and I can go to church together.  They watched them this past Sunday and it was so nice to be back at church (1st time since they came home!)
4.  Since I work in one of the germiest (is that even a word?!) places ever - a school - I will be taking a shower and changing clothes when I get home from work every day before I go anywhere near the twins.
5.  Sanitize, sanitize, sanitize.  We have hand sanitizer in every corner of our apartment and everyone that comes over knows to use it before they touch Anthony and Aryanna.

Would you join us in praying that God would place a hedge of protection around Anthony and Aryanna and that they would make it through RSV/cold and flu season without getting sick?  Also pray for Jose and I that we wouldn't go stir crazy and that we would be reminded that this is just for a season.

1 comment:

  1. Praying with you through this season. May it be God-filled with love, joy and peace and NO FLU!!

    We will just have to be creative in how we stay in touch. :) Facetime??

    Love to you all four of you!
    Becky

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