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Wednesday, February 20, 2013

8 Months/Aryanna's Upper GI Results

8 months!  (Back on January 25th - better late than never, right?!)

This month Aryanna has joined Anthony in the rolling club.  Anthony can go from tummy to back and from back to tummy, but so far Aryanna has just mastered tummy to back.  She's oh so close to going from back to tummy though.  She also sat up by herself for about 10 seconds by herself for PT yesterday!  They both love to grab their feet and put their socks/feet in their mouth.  (PT actually works on them putting their toes in their mouth!  It helps develop their ab muscles I guess!)  They've started "talking" to each other and giggling together - cutest thing ever - see the video below.  And in true twin fashion, they both got their first tooth on the same day a couple of days ago.

We took them to the NICU developmental follow-up clinic at Mercy on Monday.  We just love the nurse practitioner who does the clinic.  She always has great suggestions for helping them with their development and she really takes the time to listen to our concerns.  We spent a great deal of time taking about the twins' feedings and she actually listened to what we were telling her and agreed that eating should be a happy time - so refreshing!  Once we cover all our bases physically with Aryanna's feedings she suggested a feeding clinic in Johnston for both babies.  It sounds like they might have some suggestions on the oral aversion side of things. Overall they're doing really well developmentally.  Jose and I have noticed that Anthony doesn't use his right hand nearly as much as his left and just has to work a lot harder to use it.  He's still pretty little so it could just be that he prefers his left hand, but it could also be a result of his brain bleed.  We're going to ask our pediatrician about maybe seeing a neurologist when we go to their 9 month appointment next Monday, but we also pointed it out to the nurse practitioner.  She agreed that he has a harder time using his right hand and that it would be a good idea to have a neurologist on board as he continues to develop.  Keep praying for that as well.

Aryanna had her upper GI yesterday.  She was supposed to drink this liquid (like barium but for kiddos) while they took x-rays to make sure everything looked okay with her stomach.  I was skeptical going into it because she won't even drink her formula let alone that nasty stuff.  So when it came time for the test she of course wanted nothing to do with it.  They decided to use an ng tube (a small feeding tube through her nose) to get the 10 mls of liquid in her tummy that they needed.  I had seen them put an ng tube in while she was in the NICU, but this was a whole different experience with an 8 month old baby.  It took them 3 tries with lots of crying and gagging to get it in place, but they were able to get the test done and the good news is, her stomach is doing what it should and is in the right place.  The doctor who did the test was super nice and understanding.  He said he knows that the GIs all say that they'll grow out of the reflux stuff by a year or so, but that's a long time to wait when your baby puts up a battle every feeding.  I so appreciated his compassion for the situation we're in.

On a positive note, Aryanna's feedings have gone quite well today (we can only attribute that to all the prayers - thank you!)  We also found a sippy cup today that Anthony likes!  He only took about an ounce because he doesn't have it 100% figured out yet, but he pulled the cup to his mouth because he wanted more!!!  He NEVER does that with the bottle.  I'm really hopeful we can just get him transitioned over to the sippy cup.

Here are our little cuties at 8 + months!

 Haha Daddy!  You're so funny!

 Yum - toes!





Happy girl!

I have spiky hair, just like Daddy.

Everything goes in the mouth these days.


"Don't leave me Aryanna!"

Yup, they love each other!






Sure wish we knew what they were saying - so cute!

3 comments:

  1. Love these new pictures! They are getting so big, and are incredibly adorable. :) Can't wait to see them again!

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  2. They are going to soon outgrow those little seats!! Those smiles are such a day brightener, amazing joy. Can't wait to see them in coming months. Praying with you for healing mercies to be new each and every morning, great is His faithfulness!

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  3. awwww! I bet they are saying I love you mommy and daddy you are awesome!

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